Moving Out: A Family Guide to Residential Planning for Adults with Disabilities

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Description

ISBN:

Published: 2025

Paperback

264 Pages

 

Moving Out: A Family Guide to Residential Planning for Adults with Disabilities

Finding the right residential situation for an adult child with a disability doesn’t have to be overwhelming.

Thanks to the authors’ decades of experience counseling families on housing options, you can prepare yourself and your child for a new living arrangement. Discover the universal considerations most families face when putting plans in place:

  • Planning early
  • Selecting the residential model
  • DIY or hire an agency
  • Costs and funding
  • Hiring staff
  • Legal ownership
  • Group or individual supported living

 

Table of Contents

Foreword

Introduction

CHAPTER 1       Getting Ready: Letting Go

When Is the “Right” Time to Start Planning?

Benefits of Planning Early

How Will You Know When You and Your Child Are Ready?

How Do You Begin the Discussion?

Become an Advocate for Residential Planning

Legal Steps You Can Take to Prepare for Residential Living

What You Can Do at Home to Prepare Your Child for Independence

CHAPTER 2       Residential Options

Community Residences—How We Got Here

Models of Residential Arrangements

Group Homes

Supported Independent Living

Hybrid Settings

Shared Living

Communities

The Rocky Road to Independence: Two Ways They Got There

Selecting a Neighborhood and Dealing with Neighbors

Group Home Model Planning Story #1 – Family Initiated

Group Home Model Planning Story #2

Supported Independent Living Model Story #1

Supported Independent Living Model Story #2

Shared Living Model Story

CHAPTER 3       What Would It Look Like?

Step One – Do Your Homework

Step Two – Be an Educated Consumer

Step Three – Obtain a Residential Assessment

Step Four – Decide Who Will Develop and Operate the Residential Arrangement

Choosing a Provider Agency

Obstacles You Might Encounter When Planning Residential Services

CHAPTER 4       Finances

No Entitlements to Housing Services

Cost Factors

Sources of Funds to Purchase the Residence

Sources of Funds to Operate the Residence

Reducing Costs by Sharing Expenses

Sample Budgets

CHAPTER 5       Ownership

Reasons to Consider Buying Property

Deciding Who Should Own the Property

CHAPTER 6       Staff and Personnel

Job Descriptions, Expectations, Qualifications, and Training

Staff Retention and Turnover

Should You Employ the Staff Directly or Use an Agency?

Basic Requirements for Employers

Going Beyond the Basics

Protecting Yourself

Interviewing and Hiring a Staff Person

Avoiding Conflicts with the Agency over Staff

CHAPTER 7       Your Continuing Role

Helping Your Child Make the Move

Settling In: Where Is “Home”?

Having a Formal Role

Supported Decision-Making

Having an Informal Role

Spending Time at the Residence

Helping Your Child Get Healthy and Stay Healthy

CHAPTER 8       On Their Own

Privacy

Individuality

Conflicts with Housemates

Sexuality and Relationships

Moving On – When Is It Time for a Change?

CHAPTER 9       Permanency and Longevity

Planning with Your Child’s Money: Maintaining Eligibility for Public Benefits

Planning with Your Own Money: Supplementing Public Benefits

Estate Planning: Is Equal Always Fair?

Accumulating the Funds

Protecting the Funds

Managing the Assets After You Are Gone

Transitioning to Future Caretakers

RESOURCES

Information Regarding Disabilities

APPENDICES

Individual Profile Form

TILL, Inc. Home Alone Assessment

Routine Essential Needs

Learning Style Assessment Tool

Home Safety Checklist

Program Maintenance Agreement with Management Company

Residents’ Personal Expense Worksheet

Budget Template

Public Benefits

Sources of Funds to Acquire and/or Operate a Residence

Live-In Expectations/Tenancy Agreement

Job Description – Residential Support Professional

Job Description – Individual Support Professional

Furnishings List

House Rules

About the Authors

Index